Living With Fibromyalgia

Been  doing ok this month. Here it is another end to another month. How fast theses years go by. ..Did get in to see dermatologist . He had me come right back in the next week to get biopsy of this rash i have.. He chose the one under my arm. I have three stitches right now. Waiting on the answer  as to what is causing it . have it all on right side of body.Under left arm, left breast and finger on left hand...He said it was being sent to some of the best doctors. And would know in a week. I am very curious !! As are 4 doctors. They are wondering why just on left side ? And usually do not hurt , except the ones underside of my arm when they get swelled up. Never spreads. Not went away with different medications and creams. So will be glad to know too.He told me that they will know just what the cause is. even its a medication. So am looking forward to that.

 November is going to be a busy month. I am having eye surgery on the 17 th. So have pre-op etc again. just hoping i don't have to go off any medication..I won't be put out all the way. So thinking maybe not ?? But to help blood clot ?? I might . does taking cataracts out cause bleeding ? Don't know. Guess i will find out. I can't back out of this surgery. My eyes are bad and i would lose my driving rights.

Still dealing with my father in law. things have gotten much worse with him. I may go in everyday for a while. Just to feed him one meal .. Government has cut budget , so more employees have been let go, might not have enough to feed him. I noticed on his birthday he was too weak to feed himself. I am not sure if its medication ?? How do you decide end of life decisions for someone ? Since i have pain  I want him to have any pain medication he needs. But is it end of Parkinson's causing this ?? Or the pain medication ? Because ! I keep up on latest information on Parkinson's and this is very much a part of it. He slobbers so much, fixed stare, doesn't have any face expressions, doesn't talk to me now. I use to talk a lot. Keep his mind as sharp as i could. Talk about the past and places he and his wife had been. Things he saw in his lifetime. But now ! He doesn't say anything. He is fixed/ridged and can't turn his head in any direction. I don't know what to do at this point ? Had his sister  bothering me about the medication he is on . she would take him off everything if she could. And i won't do that. It makes her angry and me nervous.  Told Floyd maybe he needed a family  meeting about it. Now it seem's i can't talk to dad (FIL) to ask what he wants me to do..Maybe !! I just need to talk to his doctor..

Don't spend as much time with him now. He doesn't act like he really knows i am there. I will go at feeding time . So i can at least do that for him.

 

Ladies ! Don't forget to get tested for breast cancer. It only takes minutes and  it could save your life. Please get tested and don't forget to feel your breasts once a month for any unusual lumps.

 My  dear mother died of breast cancer at age 66. I get checked each year.. Don't forget to support woman's /men breast cancer. Wear pink to show support.

Thanks

 

 Am feeling very well , lately.. Just a bit of trouble in mornings. Getting out of bed is more difficult. As this cooler air causes joints to get stiff. My back just gets so darn stiff it is very difficult to get around in the mornings.

Saw my doctor to see what we are going to do about me being on long term med for kidney infections?? since i have been on it ?? My lab tests come back good. So at this time , they don't think I need to see Kidney Specialist ! but that I will be on long term meds . Really wanted to get to the bottom of the problem !! Not just cover it up with more medications.. My doctor wants to talk to the doctor that put me on Bactrim..She wants to change it too Levaquin. I am not sure I want to go on that med.

so tired of so many medications. But need some for pain relief for sure

 

  Granddaughter signing up for Navy on Monday the 12..Grandma is having a hard time with that ! She passed her tests already. In some ways it is good for her !! Some ways i am scared to have her away.. She has been my spoiled little girl all these years.. now she is almost 18 years old. Can make her own decisions. Since economy is so bad ? Maybe its a good thing. But !! Grandma will be very uneasy with her gone.

Went to Arthritis doctor yesterday , telling him i wanted to get off this prednisone !! But to my surprised he said  NO !! That the claim the eye doctor said that prednisone is harming my eyes ? Is false on the does i take. like he says. Most people get cataracts and have never taken prednisione.. So i am staying on it !! He says my body does need it !! So have to trust what he says..

The thing he was worried about is my kidney function. He was a little upset that my primary doctor  sent me to urologist instead of Kidney specialist.. So now I have to make an appointment just to tell her./him that i need to see kidney specialist. I know this Arthritis doctor could set me up ?? But he is in another town and i need someone closer if i was to have a need for surgery. So I am not done yet on tracking down these unairy tract infections. Just stuck on medication that prevents them from hurting. And it in return causes yeast infection..

So my trouble this year ?? Has not ended..

Do have eye surgery Nov.17..Be glad to get that over with. My eyes have gotten worse..

I had to take myself to doctor out of town. I can't see the signs. I turned down a one way street. And then again a second one. I got honked at and screamed at. So i soon realised i had not seen any signs saying it was one way. So it is very dangerous for others on the road as well.

Get to hospital and IV in place. they find out I have a yeast infection and doctor told me to go home. Take some meds for a week and re-schedule.. Not sure i can go another 10 sleepless nights..

Almost made it to surgery day. Scared !! But ready to get this overwith. The pain is coming back with a vengance !! Sleep just still very little at a time.

Not sick at stomach, thankfully. No call from surgeon ! So everything still going as planned on Monday. the 14th . Surgery at 1:30 in afternoon. Gee ! They couldn't get it early ??

I will be back after surgery to say how things are getting on.

Pain and stiffeness is over taking me now. Back pain, and leg/arm pain. Since i am back on prednisone my stomach isn't so sick. Mornings i have a hard time . But afternoons i am able to eat a little better.

Sleep no better. But just 3 more night to go before Surgery.

 My son has a football game tonight. I am not sure i will go out  . Sitting on those bleachers and pain , isn't going to be good. Bathroom another worry. Cool air in evenings cause mre pain . So not sure i want to put my body through that.

Still hanging in here . although at night tossing and turning i want to just call everything off. It is bad to be sick and hurting and sleep comes in short spurts. Stomach feels pretty good in afternoon's. But right back to sick at night. Think part of that is lack of sleep.  How anyone goes through just Fibromyalgia alone with no meds is quite amazing. The restless legs, pain is  unbearable at times. Let me tell you ! Lyrica does help that nerve pain. I have no problems going back on that one. Unless it is found to be causing me medical problems. 

 Saw doctor yesterday for pre-op tests. And he tells me that i should Not have been taken off prednisone so quick. That the things I am experiencing is part of that and could be dangerous. So he was calling my surgeon and told him he wanted me back on it . To come down a bit at a time. So i took that med yesterday. Maybe is why i feel some better today. Sleep is no better of course. Am hoping they don't have to delay surgery because of it. He said they should have given me more time..Looks like the specialist would figure that out.  Had some blood work done at hospital yesterday . Got signed in for surgery. The lady that drew my blood told me that they have blown my vein in my arm where they draw blood so often. I was a little upset at that.

I did not feel well going to doctor yesterday. Was a little dizzy too. They did not like that and brought me a ice pack for the back of my neck to keep me from fainting.

 Since i have been off the meds i have a lot of loose bowel movements. I told Floyd I  have to find a bathroom NOW ! Was afraid i was not going to make it. Thats a bit un-nerving for sure. just another side affect of getting off meds so quick. This is day 5. And i tell you at night i want to just say forget it ! Not going to have this surgery. Then i think i would have to do it at a later date and start all over again. So will tough it out.

 Another side affect bugging me is !! I sweat one minute then freeze the next. Just feel myself dosing off and it wakes me up.