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November 21 Eye surgery successTuesday the 17 th was surgery day..Didn't have to go off any medication..was a bit nervous on surgery day. Doctor was late 2 hoursI was getting nervous then !! Wanted to back out. But i stayed and got to surgery. The guy that gives you anthesia told me he would put these drops in my eye that is like having a block to kill pain. So he starts telling me whats going to happen and in 15 minutes its done. I talked the doctors leg off. ha !! Did well afterwards . I wasn't put to sleep. Felt no pain.
Been doing well these days after. have to put 3 kinds of drops in my eye 4 times a day. A bit of trouble. But i don't feel any pain. I can once again see. Thats a miracle .. I will get new glasses soon to fit my eyes.
Still feeding father in lawe. But took this week off mostly. I needed to look after myself too.
I will get back to feeding him soon. Monday I think. Will spens every morning with him. Not sure he realises it is a holiday coming up.. I will go decorate his room a bit for the upcoming Christmas holiday. I think he will like that. Asked family to have the kids color or cut out small trees, angels, santas or other x-mas ideas and paste tiny pictures on them of the kids. I think he would like that very much.
Happy Thanksgiving everyone. Have a nice holiday. be safe November 11 Busy with test/father in lawBeen busy getting pre-op tests done this week. Having cataract surgery on next Tuesday the 17 th. Do not have to go off any meds thank goodness.
Been also going daily to fed my father in law breakfast. He has taken a turn for the worse. He does not feed himself now. I kinda thought that last month. And was concerned. But i thought the home would tell me if they noticed he no longer could feed himself. Instead they let him lose 13 pounds. So for 2 weeks now , I been going to feed him. At least I know he is fed one meal a day. I can't do more. I am wore out completely. Can't keep this up much longer. Just too much to do. Monday I got Hospice to go into nursing home to help me and father in law. They will send in a volunteer to sit with him a few minutes. He won't really communicate with you anymore. Small sentances. If that !! He not eating much at this point. Will no longer eat any egg or meat. Only cereal. And he wanted a banana . so today i went to get some baby food. Because thats how everything has to be done for him at this point. And i fed him his banana. He ate all that for me .Plus his cereal. I also bought peaches, which was another thing he always liked . And I do still have some pudding. I can take to feed him. They told me i could pretty much feed him anything he wants , or i thought he wants. But he has to have everything puree..I am getting worn out. might have to take a day for myself. Before my body shuts down. The test (biospy) i had done on rash has come back. not cancerous. But is something children get . not usually adults. So doctor was laughing about that . It is called MOLLUSCUM CONTAGIOSUM...So a cream for that , or you can have them frozen or burned. Might just do that to a couple of them October 28 Had biopsy on rash on my armBeen doing ok this month. Here it is another end to another month. How fast theses years go by. ..Did get in to see dermatologist . He had me come right back in the next week to get biopsy of this rash i have.. He chose the one under my arm. I have three stitches right now. Waiting on the answer as to what is causing it . have it all on right side of body.Under left arm, left breast and finger on left hand...He said it was being sent to some of the best doctors. And would know in a week. I am very curious !! As are 4 doctors. They are wondering why just on left side ? And usually do not hurt , except the ones underside of my arm when they get swelled up. Never spreads. Not went away with different medications and creams. So will be glad to know too.He told me that they will know just what the cause is. even its a medication. So am looking forward to that.
November is going to be a busy month. I am having eye surgery on the 17 th. So have pre-op etc again. just hoping i don't have to go off any medication..I won't be put out all the way. So thinking maybe not ?? But to help blood clot ?? I might . does taking cataracts out cause bleeding ? Don't know. Guess i will find out. I can't back out of this surgery. My eyes are bad and i would lose my driving rights.
Still dealing with my father in law. things have gotten much worse with him. I may go in everyday for a while. Just to feed him one meal .. Government has cut budget , so more employees have been let go, might not have enough to feed him. I noticed on his birthday he was too weak to feed himself. I am not sure if its medication ?? How do you decide end of life decisions for someone ? Since i have pain I want him to have any pain medication he needs. But is it end of Parkinson's causing this ?? Or the pain medication ? Because ! I keep up on latest information on Parkinson's and this is very much a part of it. He slobbers so much, fixed stare, doesn't have any face expressions, doesn't talk to me now. I use to talk a lot. Keep his mind as sharp as i could. Talk about the past and places he and his wife had been. Things he saw in his lifetime. But now ! He doesn't say anything. He is fixed/ridged and can't turn his head in any direction. I don't know what to do at this point ? Had his sister bothering me about the medication he is on . she would take him off everything if she could. And i won't do that. It makes her angry and me nervous. Told Floyd maybe he needed a family meeting about it. Now it seem's i can't talk to dad (FIL) to ask what he wants me to do..Maybe !! I just need to talk to his doctor..
Don't spend as much time with him now. He doesn't act like he really knows i am there. I will go at feeding time . So i can at least do that for him.
October 11 October ! Breast cancer awarenessLadies ! Don't forget to get tested for breast cancer. It only takes minutes and it could save your life. Please get tested and don't forget to feel your breasts once a month for any unusual lumps.
My dear mother died of breast cancer at age 66. I get checked each year.. Don't forget to support woman's /men breast cancer. Wear pink to show support.
Thanks
Am feeling very well , lately.. Just a bit of trouble in mornings. Getting out of bed is more difficult. As this cooler air causes joints to get stiff. My back just gets so darn stiff it is very difficult to get around in the mornings.
Saw my doctor to see what we are going to do about me being on long term med for kidney infections?? since i have been on it ?? My lab tests come back good. So at this time , they don't think I need to see Kidney Specialist ! but that I will be on long term meds . Really wanted to get to the bottom of the problem !! Not just cover it up with more medications.. My doctor wants to talk to the doctor that put me on Bactrim..She wants to change it too Levaquin. I am not sure I want to go on that med.
so tired of so many medications. But need some for pain relief for sure
Granddaughter signing up for Navy on Monday the 12..Grandma is having a hard time with that ! She passed her tests already. In some ways it is good for her !! Some ways i am scared to have her away.. She has been my spoiled little girl all these years.. now she is almost 18 years old. Can make her own decisions. Since economy is so bad ? Maybe its a good thing. But !! Grandma will be very uneasy with her gone.   September 30 Back on all medicationWent to Arthritis doctor yesterday , telling him i wanted to get off this prednisone !! But to my surprised he said NO !! That the claim the eye doctor said that prednisone is harming my eyes ? Is false on the does i take. like he says. Most people get cataracts and have never taken prednisione.. So i am staying on it !! He says my body does need it !! So have to trust what he says..
The thing he was worried about is my kidney function. He was a little upset that my primary doctor sent me to urologist instead of Kidney specialist.. So now I have to make an appointment just to tell her./him that i need to see kidney specialist. I know this Arthritis doctor could set me up ?? But he is in another town and i need someone closer if i was to have a need for surgery. So I am not done yet on tracking down these unairy tract infections. Just stuck on medication that prevents them from hurting. And it in return causes yeast infection..
So my trouble this year ?? Has not ended..
Do have eye surgery Nov.17..Be glad to get that over with. My eyes have gotten worse..
I had to take myself to doctor out of town. I can't see the signs. I turned down a one way street. And then again a second one. I got honked at and screamed at. So i soon realised i had not seen any signs saying it was one way. So it is very dangerous for others on the road as well. September 14 Surgery CanceledGet to hospital and IV in place. they find out I have a yeast infection and doctor told me to go home. Take some meds for a week and re-schedule.. Not sure i can go another 10 sleepless nights.. September 13 Day 9Almost made it to surgery day. Scared !! But ready to get this overwith. The pain is coming back with a vengance !! Sleep just still very little at a time.
Not sick at stomach, thankfully. No call from surgeon ! So everything still going as planned on Monday. the 14th . Surgery at 1:30 in afternoon. Gee ! They couldn't get it early ??
I will be back after surgery to say how things are getting on. September 11 Day 7Pain and stiffeness is over taking me now. Back pain, and leg/arm pain. Since i am back on prednisone my stomach isn't so sick. Mornings i have a hard time . But afternoons i am able to eat a little better.
Sleep no better. But just 3 more night to go before Surgery.
My son has a football game tonight. I am not sure i will go out . Sitting on those bleachers and pain , isn't going to be good. Bathroom another worry. Cool air in evenings cause mre pain . So not sure i want to put my body through that. September 09 Day 5Still hanging in here . although at night tossing and turning i want to just call everything off. It is bad to be sick and hurting and sleep comes in short spurts. Stomach feels pretty good in afternoon's. But right back to sick at night. Think part of that is lack of sleep. How anyone goes through just Fibromyalgia alone with no meds is quite amazing. The restless legs, pain is unbearable at times. Let me tell you ! Lyrica does help that nerve pain. I have no problems going back on that one. Unless it is found to be causing me medical problems.
Saw doctor yesterday for pre-op tests. And he tells me that i should Not have been taken off prednisone so quick. That the things I am experiencing is part of that and could be dangerous. So he was calling my surgeon and told him he wanted me back on it . To come down a bit at a time. So i took that med yesterday. Maybe is why i feel some better today. Sleep is no better of course. Am hoping they don't have to delay surgery because of it. He said they should have given me more time..Looks like the specialist would figure that out. Had some blood work done at hospital yesterday . Got signed in for surgery. The lady that drew my blood told me that they have blown my vein in my arm where they draw blood so often. I was a little upset at that.
I did not feel well going to doctor yesterday. Was a little dizzy too. They did not like that and brought me a ice pack for the back of my neck to keep me from fainting.
Since i have been off the meds i have a lot of loose bowel movements. I told Floyd I have to find a bathroom NOW ! Was afraid i was not going to make it. Thats a bit un-nerving for sure. just another side affect of getting off meds so quick. This is day 5. And i tell you at night i want to just say forget it ! Not going to have this surgery. Then i think i would have to do it at a later date and start all over again. So will tough it out.
Another side affect bugging me is !! I sweat one minute then freeze the next. Just feel myself dosing off and it wakes me up. September 06 Day two off medsOMG !! i knew it was going to be tough trying to get through these days before surgery. Saturday night i could not sleep, was so sick at my stomach, and Every hour i was up and in the bathroom. Finally Sunday morning 5 am was last i saw till 6:45 am. Not much sleep for sure and once i got up the sickness got worse. Couldn't eat. I sat in my recliner for a while. Felt better than trying to lay flat in bed. I did get a bit of sleep. Less than half an hour.
Around noon i needed to eat something. But toast wouldn't work. Had small bit of chicken noodle soup and few crackers . I did have some hot herbal tea. That calmed my stomach a bit.
Second night of no meds and sleep won't come tonight either. You don't realise how addicted you become to sleeping medication. Stomach not so queasy now. But smells still make me a little upset. Went to bed at 10 pm my usually time. Turned on same station as always on tv. But laying there almost 2 hours is enough. Almost midnight now and my body won't give up. Might try staying in this room . Don't want to keep Floyd awake another night. Pain isn't too bad. Except when trying to sleep. Legs are getting to restless. A big problem i had before medication to help. I really don't know how a person gets off so many meds for 10 days . Am sure i haven't hit the worst of it yet. Amost want to call the surgery off. Can't stand this staying awake . September 04 Tests BackThey are back !! Doesn't look so good from my end. Surgery was set up for Sept 14..I am not ready !! Have to go off all arthritis medications, muscle relaxers,sleeping meds,pain meds. Not looking forward to the next 10 days without medications. Starting tonight.
I may have to stay in this room to try to sleep the next couple weeks. Don't need to be disturbing Floyds sleep. I know I am not going to be easy to get along with. Can you say crabby ?? With pain, and no sleep...I can not even think of how just stopping so many meds all of a sudden for 10 days is going to affect me ??
Eye surgery today , told me to put it off till i felt better after this upcoming bladder surgery.
I asked the doctor if this was the cause of my Unairy tract problems ? He said I was having urine backing up into my vagina.. How ?? I sure don't know. But knew over this past year when i needed to pee in a little cup ?? I couldn't do it ! Couldn't catch the stream. So i guess i know why now , that it was difficult to catch it. Hope all this mess clears up.
I was looking up some causes of Overactive bladder. And says can be side affects from certain medications, Unairy tract infection, Fibromyalgia..So who knows why ? This is the third time i have had this surgery. Pray it is the last one.
I will keep you informed as to how I am feeling being off
prednisone,Lyrica,pain med (tylenol/codine),my muscle relaxer, sleep meds,methratrextate August 31 Prednisone and CataractsWent to eye specialist today. Dilated my eyes and did some testing. Much like the regular eye doctors do. but to a more in-depth range. He tells me i have cataracts in my left eye , caused by taking prednisone. I have taken it a couple years. I didn't like taking it ..Was reading about it and some things i worried about are things that can be caused by taking it. . like my face breaking out, sores on my tongue. Which has just happened recently. I take predinsone only every other day. so i started doing it just twice a week. No ! doctor did not tell me too. But i want off this medication. And i will once i see my Rheumatologist on the 14th of Sept. Its the cause of my eye problems. ..Now is it also the reason behind the unairy tract infection , and kidney problems ??
I did have the test on last wed the urodynamic on my bladder to test for muscle strength..And results and more tests will be on wed the 2nd of Sept.
But for now i will wait for insurance to approve my surgery...And then i will find out when that will be.. August 24 Back PainSomedays it is that way. The pain doesn't stop.. You try stretches..you try hot tub..you try pain meds.. you try sleeping . I did some extra cleaning today. In positions that are normal to be in. ha !! Had to crawl under this desk to clean. Not sure i want to do it again , if i am going to hurt like this.
Hopeing for a better day tomorrow. And waiting to get Wednesday over. And get some results of the tests . Got to figure out what is going on . Tired of pain, tired of feeling ill, tired of feeling grumpy because i can't d so much.
Times like this !! Make you not want to live a long life.. Not with this much pain. August 22 Testing WedWell..since testing got delayed last time, this coming Wed is the day to try again. I will be taking myself this time. I hope they do not delay it again.
I haven't been feeling so well this past week. Having some dizzy spells and feel like i am going to pass out.. Was in town , feeling fine one minute. The next , i was sweating and sick at my stomach, and dizzy. I had to leave that store then.. Do not know where this is coming from. Maybe infection in my body ?? I know we have to get to the bottom of this unairy tract infection. something going on for it to be affecting my eyes also..
The following week, the 31 I see the eye specialist. But they were hoping i would have these other tests results back. But not going to happen.. I just want to get well. Tired of UTI infections. And doctor delaying testing. Could be serious, and they just play around. August 14 wasted weekJust a wasted weekSon has had hell week for football all week. And school started on Thursday.
I had some testing to be done on Wed.. and then doctor moved father -in-laws appointment to same day. And Randy had dentist at 2 and back to football practice at 5:30. Floyd took off so i didn't have to do it all. We got Randy to school and headed up to Modesto for my appointment. drinking a bottle of water on the way so my bladder is full when i get there . walk in and she tells me well what am i doing there ? She called at 7 and left a message for me not to come. well kinda late here i am . LOL but the lady to do the test was not there. A few words were exchanged and i left not in the best of moods. Especially when she refused to make my next appointment on a day (other than ) i had another specialist. She acted like i wasn't even there. So had to move that appointment as well. ..So now waiting till the 26th to have that test. Floyd went with his dad to his appointment. Guess he has been complaining of headaches . so they are going to do a biopsy on the vein on/near his temple. Not sure what that may find ? Men don't pay that much attention. HA !! Now they call (nursing home) and say that his dad is running a fever and will have some blood work done. They already warned us about Shingles outbreak. So I been wanting to stay clear. But ! Not sure that can happen. Haven't heard from them this morning. So not sure how he is yet today July 27 Fibromyalgia/ RA/medicationMore Health issue'sHad my blood work re-done two weeks ago. (July 13,2009) i thought i would have heard the results by now. I called today and she looked in my chart and said it was there. . But !! The doctor had not read it and was not going to be there for a week. Ha !! Waiting is the name of the game. Had my eyes tested today. I never went their thinking any of this would be connected to my eyes. I knew i was having some trouble seeing. Really notice when Floyd wanted me to read road signs and i couldn't see them. Why do men get so mad ? I wasn't playing dumb. I want to get where we are going just as much. ha !! Of course they write down any medications you take. As they went over them I had to remember to tell them I am on a temporary one for Urinary tract infections. So doctor does my eyes. I am not seeing letters no matter how big with my left eye. Thats a little scary to realise. He then asked if eye problems, or kidney disease, Diabetic run in the family ? Said Sugar levels often show this trait. I didn't know of anyone having problems. I told him then that i had a blood test come back showing kidney trouble. So he is waiting to re-test my eyes once all my testing for my kidneys/bladder are done. He says often prednisone can cause such problems. I certainly hope they get to the bottom of this. I need another test as well to check the blood sugar. Just doctor after doctor. Also my right eye tears like i am crying. He said my tear drain in my eye is blocked. And if i could put up with the inconvenience for a couple more months, he would re-test my eyes after all my tests get back. And can do surgery on my tear drain. OHHH What next ? Fibromyalgia and RA are a big pain.. I know why some people opt not to take meds. But how do they deal with the pain ? Just really hoping i get off the right meds so my body can heal. July 14 Hurting a bitDoesn't it seem when you know something could be wrong , More pain seem's to manifest itself ? My back is hurting . But that is natural. But both sides of my back hurt too. Tired of hurting. Got in the spa thinking it would help. but my jets were hitting just right and made me hurt. Had to go to different spot.. I guess i could take more pain meds. I forget about that. Or predisone. But am afraid to take anything now, till we know for sure what is going on. July 11 UTI"S and healing ?I thought going to see the specialist (urology) would be my way to find out why i keep getting them.. I saw that doctor on Wed this week. He set up some tests to go through. Set for Aug 12. Then in mean time i got a call from my Arthirits doctor. Saying that my blood work showed Kidney Damage. And wants me to go get it re-done as soon as possible.
Now I am scared for sure. Hope its just a medication and nothing worse. And hope once I stop the med , things will go back to normal.. Had a test over the last few years , showed something too. But I was taken off Cymbalata and it went back to normal.
It is a shame we take meds to help with pain, and keep RA from damaging our bodies. some just make us worse. I wish i was strong enough to get off all meds. I hate this kind of life. Now i have to sit and wait till Sep 2, before i will hear any results. Thats a long time to worry. July 07 Time for Floyd to go to workHere it has been 6 weeks now. It's time he goes back to work. He See's doctor on the 8th and goes back to work on the 9th. Money is very short right now. He hadn't signed the papers that would start the disability money coming in. Thank heaven for a little back up money in the bank. Money for other things is tight. Hopefully the money owed him will get here quickly.
Floyd being off work let us go camping a couple times. we spent Thursday,Friday,Saturday and came home on Sunday. We had a nice time out at the club we belong too. Thats the only camping we could afford this year. State parks want nearly $30. a night. we pay $5. a night at the club.
We had quite a few family members out camping with us. Had big breakfast ..Floyd likes cooking outdoors. 4th of July we have a raffle at the club. Was the poorest one we ever had. People gifts for the raffle were not as good as usual. And i didn't make a quilt for it this year. Not everyone knew the club was back again , after the county closing it for a couple years after a flood. Citing different issuses of course. Next year i will plan on making a quilt. Will get fabric as it goes on sale. Ohh yes ! My sister in law asked me to make a Military memory Quilt for her hubby. So might be working on that very soon.
I go see specialist in Urology tomorrow. To have him check as to why i keep getting urinary tract infections. Hope we can find an answer. Keep your fingers crossed for me. Am feeling fine as long as i am medication for it.Hope it isn't long term.
Feeling pretty good. No extra pain. A few headaches. But I think thats stress. I did not take my one med last week. I am so tired of my hair falling out. Guys here complaining about it. Say they are finding my hair everywhere. I can run my hands through it and find too many.. Will I go take the med this week ?? Guess i should because it helps inflammation for R.A. Always something June 29 Go away 100+ heatWell ! Guess i should be used to the 100 heat . Lived here my entire life. But older i get ?? Less tolerance i have for heat. Trying not use use AC in living room so much. I have this small bedroom that i am in with a small AC and it feels great. So guess where I take my naps?
Last year during the summer we had one bill that was $475. for one month. We could not pay that. Had to charge it on credit card. Don't want to do that anymore. Will turn on living room AC at dinner time. We will enjoy rest of evening there. Floyd has been doing some much needed honey-do's. Yard looking cleaning, putting in sprinklers in my flower bed. (Kinda late for about 4 roses. ) I gave up when he took my hose hook up a few years back. Now its there again , even closer than before. No one should bother it. not un do the hose like before. I could not get it back on. So i just gave up on those roses a couple years ago. I use to love to get up real early ,before anyone else was up. I watered and weeded a bit everyday. Would like to do that again.
I remember a few years ago in a magazine a child's outdoor Kids wash. So i looked it up today for Floyd to see if he would make one for our grandkids. Great way to water and keep kids busy. It shows kids riding their bikes through it. Just PVC pipe with mister jets that spray water on them as they go through. So cool. He tells me it isn't that hard. And cost is around $10. So really a bargain..Gets hot where my kids live too. So i think it will be loads of fun. Hope he gets one made before the week end. We celebrate 4 th of July down at the Fisherman's club we belong too. This year the activities are back !! County stopped them for a couple years.
We always have a raffle on items people bring. Its pretty cool. I usually make a quilt or two. But was not sure they were going to have it this year. They will be disappointed in that i didn't make one. Next year for sure.. So want to take the Kids wash with us. Kids can play in it when it gets hot and before fireworks.. Would like Floyd to make a couple extra. So we can raffle them off for kids prizes.
Waiting to see specialist (urology) I was suppose to have a CT scan done on my kidneys. But they never made the appointment. Guess it is up to me to call them back and hassle them.. |
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