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Living With Fibromyalgia

21 november

Eye surgery success

Tuesday the 17 th was surgery day..Didn't have to go off any medication..was a bit nervous on surgery day. Doctor was late 2 hoursI was getting nervous then !!  Wanted to back out. But i stayed and got to surgery. The guy that gives you anthesia told me he would put these drops in my eye that is like having a block to kill pain. So he starts telling me whats going to happen and in 15 minutes its done. I talked the doctors leg off. ha !! Did well afterwards . I wasn't put to sleep. Felt no pain.
Been doing well these days after. have to put 3 kinds of drops in my eye 4 times a day. A bit of trouble. But i don't feel any pain. I can once again see. Thats a miracle .. I will get new glasses soon to fit my eyes.
Still feeding father in lawe. But took this week off mostly. I needed to look after myself too.
I will get back to feeding him soon. Monday I think. Will spens every morning with him. Not sure he realises it is a holiday coming up.. I will go decorate his room a bit for the upcoming Christmas holiday. I think he will like that. Asked family to have the kids color or cut out small trees, angels, santas or other x-mas ideas and paste tiny pictures on them of the kids. I think he would like that very much.
Happy Thanksgiving everyone. Have a nice holiday. be safe
11 november

Busy with test/father in law

Been busy getting pre-op tests done this week. Having cataract surgery on next Tuesday the 17 th. Do not have to go off any meds thank goodness.
Been also going daily to fed my father in law breakfast. He has taken a turn for the worse. He does not feed himself now. I kinda thought that last month. And was concerned. But i thought the home would tell me if they noticed he no longer could feed himself. Instead they let him lose 13 pounds. So for 2 weeks now , I been going to feed him. At least I know he is fed one meal a day. I can't do more. I am wore out completely. Can't keep this up much longer. Just too much to do.
Monday I got Hospice to go into nursing home to help me and father in law. They will send in a volunteer to sit with him a few minutes. He won't really communicate with you anymore. Small sentances. If that !! He not eating much at this point. Will no longer eat any egg or meat. Only cereal. And he wanted a banana . so today i went to get some baby food. Because thats how everything has to be done for him at this point. And i fed him his banana. He ate all that for me .Plus his cereal. I also bought peaches, which was another thing he always liked . And I do still have some pudding. I can take to feed him. They told me i could pretty much feed him anything he wants , or i thought he wants. But he has to have everything puree..I am getting worn out. might have to take a day for myself. Before my body shuts  down.
The test (biospy) i had done on rash has come back. not cancerous. But is something children get . not usually adults. So doctor was laughing about that . It is called MOLLUSCUM CONTAGIOSUM...So a cream for that , or you can have them frozen or burned. Might just do that to a couple of them
28 oktober

Had biopsy on rash on my arm

Been  doing ok this month. Here it is another end to another month. How fast theses years go by. ..Did get in to see dermatologist . He had me come right back in the next week to get biopsy of this rash i have.. He chose the one under my arm. I have three stitches right now. Waiting on the answer  as to what is causing it . have it all on right side of body.Under left arm, left breast and finger on left hand...He said it was being sent to some of the best doctors. And would know in a week. I am very curious !! As are 4 doctors. They are wondering why just on left side ? And usually do not hurt , except the ones underside of my arm when they get swelled up. Never spreads. Not went away with different medications and creams. So will be glad to know too.He told me that they will know just what the cause is. even its a medication. So am looking forward to that.
 November is going to be a busy month. I am having eye surgery on the 17 th. So have pre-op etc again. just hoping i don't have to go off any medication..I won't be put out all the way. So thinking maybe not ?? But to help blood clot ?? I might . does taking cataracts out cause bleeding ? Don't know. Guess i will find out. I can't back out of this surgery. My eyes are bad and i would lose my driving rights.
Still dealing with my father in law. things have gotten much worse with him. I may go in everyday for a while. Just to feed him one meal .. Government has cut budget , so more employees have been let go, might not have enough to feed him. I noticed on his birthday he was too weak to feed himself. I am not sure if its medication ?? How do you decide end of life decisions for someone ? Since i have pain  I want him to have any pain medication he needs. But is it end of Parkinson's causing this ?? Or the pain medication ? Because ! I keep up on latest information on Parkinson's and this is very much a part of it. He slobbers so much, fixed stare, doesn't have any face expressions, doesn't talk to me now. I use to talk a lot. Keep his mind as sharp as i could. Talk about the past and places he and his wife had been. Things he saw in his lifetime. But now ! He doesn't say anything. He is fixed/ridged and can't turn his head in any direction. I don't know what to do at this point ? Had his sister  bothering me about the medication he is on . she would take him off everything if she could. And i won't do that. It makes her angry and me nervous.  Told Floyd maybe he needed a family  meeting about it. Now it seem's i can't talk to dad (FIL) to ask what he wants me to do..Maybe !! I just need to talk to his doctor..
Don't spend as much time with him now. He doesn't act like he really knows i am there. I will go at feeding time . So i can at least do that for him.
 
11 oktober

October ! Breast cancer awareness

Ladies ! Don't forget to get tested for breast cancer. It only takes minutes and  it could save your life. Please get tested and don't forget to feel your breasts once a month for any unusual lumps.
 My  dear mother died of breast cancer at age 66. I get checked each year.. Don't forget to support woman's /men breast cancer. Wear pink to show support.
Thanks
 
 Am feeling very well , lately.. Just a bit of trouble in mornings. Getting out of bed is more difficult. As this cooler air causes joints to get stiff. My back just gets so darn stiff it is very difficult to get around in the mornings.
Saw my doctor to see what we are going to do about me being on long term med for kidney infections?? since i have been on it ?? My lab tests come back good. So at this time , they don't think I need to see Kidney Specialist ! but that I will be on long term meds . Really wanted to get to the bottom of the problem !! Not just cover it up with more medications.. My doctor wants to talk to the doctor that put me on Bactrim..She wants to change it too Levaquin. I am not sure I want to go on that med.
so tired of so many medications. But need some for pain relief for sure
 
  Granddaughter signing up for Navy on Monday the 12..Grandma is having a hard time with that ! She passed her tests already. In some ways it is good for her !! Some ways i am scared to have her away.. She has been my spoiled little girl all these years.. now she is almost 18 years old. Can make her own decisions. Since economy is so bad ? Maybe its a good thing. But !! Grandma will be very uneasy with her gone.
30 september

Back on all medication

Went to Arthritis doctor yesterday , telling him i wanted to get off this prednisone !! But to my surprised he said  NO !! That the claim the eye doctor said that prednisone is harming my eyes ? Is false on the does i take. like he says. Most people get cataracts and have never taken prednisione.. So i am staying on it !! He says my body does need it !! So have to trust what he says..
The thing he was worried about is my kidney function. He was a little upset that my primary doctor  sent me to urologist instead of Kidney specialist.. So now I have to make an appointment just to tell her./him that i need to see kidney specialist. I know this Arthritis doctor could set me up ?? But he is in another town and i need someone closer if i was to have a need for surgery. So I am not done yet on tracking down these unairy tract infections. Just stuck on medication that prevents them from hurting. And it in return causes yeast infection..
So my trouble this year ?? Has not ended..
Do have eye surgery Nov.17..Be glad to get that over with. My eyes have gotten worse..
I had to take myself to doctor out of town. I can't see the signs. I turned down a one way street. And then again a second one. I got honked at and screamed at. So i soon realised i had not seen any signs saying it was one way. So it is very dangerous for others on the road as well.
14 september

Surgery Canceled

Get to hospital and IV in place. they find out I have a yeast infection and doctor told me to go home. Take some meds for a week and re-schedule.. Not sure i can go another 10 sleepless nights..
13 september

Day 9

Almost made it to surgery day. Scared !! But ready to get this overwith. The pain is coming back with a vengance !! Sleep just still very little at a time.
Not sick at stomach, thankfully. No call from surgeon ! So everything still going as planned on Monday. the 14th . Surgery at 1:30 in afternoon. Gee ! They couldn't get it early ??
I will be back after surgery to say how things are getting on.
 

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Carole

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Married with 3 children. Have two granddaughters and a new baby grandson. He was born 2-14-2007.I am on ss disability because ofFibromyalgia.have Rheumatoid Arthritis as well. I fight the pain everyday. I try not to let it get me down. But at times It over powers me. The last couple years have been very difficult for me ..But this new Year brings new hope. My adopted son has his last name changed to our's now. 2-6-2007 Grandson was born 2-14-2007..Daughter got married 3-09-2007
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